Health Minister to face Translarna question

Thu, 13 Oct 2016

Finley Hesketh

The Island's new Health Minister will be asked about funding a drug that could help a local boy with Duchenne.

Seven-year-old Finley Hesketh has the rare muscle-wasting condition, but the Manx Government does not fund Translarna - a drug which could help slow the progression of his condition.

MLC David Cretney will put a question to Kate Beecroft when Tynwald sits next week, asking the Douglas South MHK whether her department will review its decision not to fund the drug.

The drug is available on the NHS in the UK, resulting in Finley's parents indicating that they would move away if they are unable to secure Translarna funding locally.